8.14.2014

TYPE 1 DIABETES - WHAT I KNOW SO FAR

It's been a month. And I took a picture of what a months worth of needles looks like, but it seemed too graphic to post. Graham gets 4-5 shots per day, multiplied by a month, and you can imagine what that would look like.

I haven't talked much about the specifics of type 1 diabetes because I am still in the soak-up-every-bit-of-information-possible stage. But I have been asked a lot about what the signs were in Graham and how we came to the diagnosis.

He had been acting weird for a month, becoming super whiny, tired all the time. Then about a week before he ended up at the hospital, he was going to the bathroom every 30 minutes, 24 hours a day. He hadn't slept for days, always coming in our room asking for water throughout the night. I was changing accident sheets all the time, and cleaning the floor when he didn't make it to the bathroom fast enough. The final straw to me calling his doctor was him vomiting a few times in one day. I immediately made a next day appointment thinking it was a stomach virus.

Before his next day appointment, we had him fast over night and skip breakfast so that he wouldn't throw up again. His doctor was able to do a quick finger prick in her office which revealed his blood sugar / glucose levels were sky high, which then lead us to the unexpected whirlwind to the ER. You can read the rest of the day of diagnosis here.

With that, here are some things to know...

Signs of Type 1 Diabetes (Graham showed all of these):
  • tired all the time
  • thirsty all the time
  • bathroom all the time
  • irritable / irrational / whiny
  • only ate / craved sugary things - his body was searching for a source of energy
  • lost about 10 pounds in one month

You can read more about type 1 diabetes here. The article was written by a 60 year old woman who has lived with type 1 diabetes for 42 years. She details how those with type 1, and parents of children with type 1, are working around the clock to regulate normal blood sugars… how it is an all day all night, every day and every night, non stop battle. I have recommended this article to all my family and friends as it explains diabetes on a personal level, not a scientific one.

I've also been pinning recipes and articles on my pinterest board here. Send me your carb free recipes!

And my friend Lindsay posted on her blog here after Graham was diagnosed, sharing tips for parents with newly diagnosed children. I cried when I read it, as Jeff and I have been pricking our fingers each time with Graham.





8.05.2014

OUR FIVE DAY STAY

It was June 3-7, 2014. We went from the ER, ambulanced to the pediatrics ICU in a city nearby, then transferred to the regular pediatrics. The first couple of days he was in bad shape and slept most of the day while he was on an IV and insulin drip. Once his body started to recover and regain balance, he started to perk up and we saw our sweet, funny, goofball Graham come back to us. Based on his blood work, they said his body had stopped making insulin for about a month, which looking back is about when his personality and behavior completely changed. It was such a relief to see his little body receive the help it was begging for, and to see him becoming happy and playful again as he recovered.

There was an initial feeling of devastation, as nobody wants to see their baby diagnosed with an incurable disease. But the devastation faded and turned into determination. This disease may be incurable but it is manageable. And we were now determined and focused on taking care of our baby and his health.

These picture were taken on the pediatrics floor the last couple days we were there.


And after five days, we were handed bottles of insulin, boxes of needles, glucose meter, glucagon pen, ketostix… and finally headed home. To our new life with diabetes.

It was a strange feeling.

However, I quickly reached a peace with all of it. A peace that comes not from feeling good about our situation or fully understanding it yet, but from the one truth that matters most: God is in control. and will be at work for us. 

"Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus." Philippians 4:6-7